In the shade

19_intheshade

In the shade, acrylics, 8″ x 8″

I finally found some time today to finish this portrait of my husband Ross.

He is sitting in the shade, speckled with light. I liked the content, contemplative state that he was in when the reference picture was taken. We had recently moved to Victoria and this was one of the moments when we realized that we really made a great move.

Ross has a degenerative neurological disorder called Friedreich’s Ataxia. It affects balance and coordination. The energy reserve of each cell (the mitochondria), is not producing enough of a certain protein. So, it leaves him very tired, very quickly. Especially since he has to overcompensate for his lack of coordination and balance for every move he makes. He has been in a wheelchair for about 15 years now. Moving to Victoria (no snow), from Quebec City (lots of snow!), has been like a new found freedom for him. He is not restricted to only move around in the summer and he is loving it here. We all are.

He’s my heart and my soul. He’s such a positive, quiet force in our family. Despite his disorder, he never complains, he just does what he does. He’s also an awesome father. We’ve been together for almost 20 years now. What a journey!

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One thought on “In the shade

  1. Pippa

    Love the painting or Ross and your write up about him. Your family is a great addition to Victoria – especially Cook Street Village

    Like

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